TIFLIX is an extensive library of video recordings of webinars, conferences, workshops, and presentations that relate to the prevention and management of these haemoglobin disorders. The target audience of these videos are healthcare professionals and/or patients. Topic discussions are led by renowned international medical scientific experts and leading patient advocates. The discussions address issues on prevention, management, new treatments, and effective advocacy to access to new treatments for Thalassaemia, Sickle Cell Disease and other rare anaemias.
Anyone who is interested in learning more about Thalassaemia, Sickle Cell Disease and other rare aneamias, whether this is a healthcare professional, patient, or a loved one, they are highly encouraged to register free of charge to this service. The video recordings provide up-to-date information, and the library is continuously enriched with the latest material available.
Thalassaemia, sickle cell disease and other rare aneamias such as Pyruvate Kinase Deficiency (PKD) belong to the family of haemoglobinopathies – a group of hereditary (genetic) blood disorders. Approximately 7% of the global population is a carrier of an abnormal haemoglobin gene, and more than 500,000 children are born each year with these disorders globally, due to the lack of effective programmes for their prevention.
Thalassaemia International Federation (TIF) as a patient-oriented non-profit, non-governmental umbrella federation, aims to promote access to optimal quality care for all patients with haemoglobinopathy disorders. For this purpose, TIF has developed TIFLIX, the ultimate platform for healthcare specialists and patients with thalassaemia, sickle cell disease and other rare anaemias.